Workpackage overview

WP1 | Current Use of SNOMED CT

The objective of this work package is to build a solid background of common knowledge. This includes: 

  • Collecting information about the past, current and future usage of SNOMED CT in Europe at all the involved levels(Cross-Borders/National/Regional); with a view also to non-EU experiences. 
  • Collecting information about current and future possible policies of IHTSDO, including cooperation with other SDOs, and about the usage of SNOMED CT within other standards 
  • Assessing whether SNOMED CT satisfies the criteria listed in annex II of the EU standardization regulation 
  • Identifying - among those realized - appropriate use cases suitable for performing an evidence-based assessment; 
  • Providing an overview of the commonly recognized advantages and drawbacks of SNOMED CT

WP Lead: HL7 International Foundation

WP2 | Building New Evidence

This workpackage will conduct different studies that target the proposed terminology scenarios (ADOPT: SIOp by using SNOMED CT Europe-wide ; ALTERNATIVE: SIOp by using other terminologies; ABSTAIN: do nothing), address the overall goal (“Semantic Interoperability”), guided by “Clinical Requirements” in order to assess the SNOMED CT’s technical fitness for use. As technical fitness for use is a prerequisite for clinical fitness for use, and samples of clinical data are used for the studies, clinical fitness for use can be indirectly assessed. The evidence created by studies proposed in WP2 is assumed to disseminate knowledge about the current state of SNOMED CT, in order to inform policy dialogues and a strategic planning processes that are necessary to set the course for clinical reference terminologies at the level of the EU and its member states. The following outcomes will address the goals of semantic interoperability and clinical fitness with regard to the terminologies under scrutiny: 

  • a detailed overview of the quality and coverage
  • empirical evidence of usefulness for structured reporting, empirical evidence of usefulness for manual and automated semantic annotation of structured and unstructured data empirical evidence of utility for use of encoded data at various levels of aggregation, estimation of which kinds of localised terminology content should be created and generated at which cost.

WP Lead: Medical University of Graz

WP3 | Impact Assessment and Socio-Economic Stakeholder Analysis

This work package evaluates the adoption of SNOMED CT as a core terminology to solve semantic interoperability issues from a socio-economic perspective. This value assessment covers all financial, institutional, governance, and business aspects. 

The objectives of this work package are to:

  • investigate the use of SNOMED CT to solve semantic interoperability issues from an economic and financialperspective 
  • provide the business model and financial data of using SNOMED CT as clinical terminology for preparing the deployments of eHealth services under CEF (Connecting Europe Facility)
  • categorise, develop indicators and assess the costs and benefits of SNOMED CT
  • analyse and assess issues and impacts of adoption barriers, and of political, institiutional, legal, and governance nature 

Through focus group reach out and interview representatives from NRCs, member state responsible, and terminology experts, this WP will ensure internal and external coordination for investigation the value and impact of deploying SNOMED CT: through alignment and participation in WP1 survey, focus group, and interview; and through stakeholder engagement to deliver real-world indicators and information on costs and benefits. 
Overall, the impact assessment in this WP aims to critically collect, analyse, and interpret both benefits and costs (tangible and in-tangible; financial and non-financial) of using SNOMED CT for eHealth deployment. Only through a robust methodological approach based on policy and public investment evaluation tools, it can be ensured to objectively investigate the benefits SNOMED CT for semantic interoperability without inserting bias towards underplaying the costs. Avoiding bias, for example, means to confront the positive impacts of SNOMED CT with analysing further the reasons for some countries not adopting SNOMED CT. The synthesis of this work package is closely related with summarising the evidence of ASSESS CT’s assessment in WP1 and WP2 to the policy recommendations to be drafted in WP4.

WP Lead: empirica

WP4 | Policy Guidance and Final Recommendations

The objectives of this work package are: 

  • To guide all project activities with a policy view by formatively interweaving advice and guidelines from the eHealth Network and developments related to the EU-US roadmap
  • To develop a portfolio of best practice approaches to the adoption of SNOMED CT, including prerequisites, critical success factors and methods to overcome technical, legal, organisational and human factor barriers. 
  • To delineate the important gaps in the availability and licensing of SNOMED CT and derived assets (such as value lists, translations, tools) and in the market (such as EHR system capability, educational resources, analytics). 
  • To produce policy recommendations for the EC, the EU member states, IHTSDO and other relevant decision-making bodies, and strategy recommendations for countries, regions, industry, academia and professional organisations to scale up the successful adoption of SNOMED CT and maximising value from coded clinical data.

    This figure illustrates the interaction that will take place through this work package between the the kinds of evidence that will be derived through all of the project work packages, and the needs of decision-makers. The goal of WP4 is to frame and present to decision makers such as the eHealth Network the experience and learning of how and why SNOMED CT has been adopted across Europe, success strategies for achieving that adoption and the value so far demonstrated from its use.

WP Lead: EuroRec